Hi, i just wanted to share that Alex cut his first tooth yesterday...YEA!!! and it looks as if the 2nd one is soon to follow. I don't how long it will take to grow but it defintely has cut thru his gum. (it's his bottom front tooth). It was funny, it was as if he was 'proud' of it, he chuckled and smiled a lot yesterday (i guess it was a lot of relief off of his gum :))

Hi to all, I've been so busy lately and continue to be this week, but we're going out of town again next week so I want to answer everyone while I have a few minutes! First, horseback riding. Does Simon like it? I can't really tell! He's had 2 good weeks and 2 bad ones. The first week he was getting sick and did NOT like it at all. Went around the track once. The second week was much better and the instructor decided to "back ride" him, meaning she sits behind him. That went great and he went 2… Continue

Billys nurse and physio were out today and havent seen him in three weeks (due to hols etc) and they see a great improvement in him especially his reactions and responses. They were also amazed with how alert he was . They brought him out this special table and chair its so cool as it makes him sit up straight with little support and the table fits in perfectly around him so he is able to reach for toys really easily. I think this is going to be really good for him he was delighted with himself… Continue

We got our official letter of confirmation today confirming that Billy has PKS from the Genetics Dept. Eventhough he was diagnosed verbally I think there is something depressing when its laid out in black and white to you it makes it all so real. He was in hosp today for his hearing his left one is giving no response and his right only very little so he has to have an operation to release fluid from his ears and get grommets inserted and they also have to check his inner ear and see what the pro… Continue

Over this past weekend we visited Grandma and Grandpa and got to see Airyn's cousin who is 3 months younger than her. It was a bit disappointing to see her normal development and then compare her to where Airyn is. I know I will always be dealing with it. But on the other hand..I think it may also motivate her in the future. We won't see her cousin much but maybe those short visits will encourage Airyn. I will have to post some pics as soon as Grandma emails them to me..LOL Christine